Photo: Jackson's Honest founder/CEO Megan Reamer shares a laugh with son Jackson on Independence Day last year in Crested Butte, Colo.
To recognize Rare Disease Day on Tuesday, Feb. 28, the Jackson's Honest team has pledged all proceeds via online sales at jacksonshonest.com in February as a donation to AGS Americas Association to support research and clinical trials. AGS is a rare disease with limited government funding.
As Jackson's Honest founder/CEO Megan Reamer is wont to say about her growing business: "The story begins and ends with our son Jackson." The first of Megan and Scott's four children, Jackson began suffering troubling symptoms — weight loss, spasms, gastrointestinal distress — between his first and second birthdays. What was causing those symptoms would be a mystery for more than a decade as the Reamers consulted anyone, everyone, anywhere for a diagnosis.
Without answers, as a recent Denver Post article about Jackson's Honest deftly outlined, the Reamers scrutinized what they could control: Jackson's diet. And via trail and error, the Reamers learned that the type of saturated fat found in coconut oil, in which Jackson's Honest chips are made, helped to alleviate Jackson's symptoms.
At long last in 2014, the Reamers had a diagnosis: Aicardi-Goutieres Syndrome. AGS is a rare autoimmune disorder that mainly affects the brain, the immune system and the skin in infants and babies. For more information about AGS, visit agsamericas.org. For details on Rare Disease Day, visit rarediseaseday.org.